tag:blogger.com,1999:blog-1022552198648860734.post894230922372582226..comments2023-06-16T04:26:07.832-05:00Comments on The Michigan Herr's Update: Fridaymichigan_herrshttp://www.blogger.com/profile/02922717637859625794noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1022552198648860734.post-49208132886439268642008-02-10T20:32:00.000-06:002008-02-10T20:32:00.000-06:00Rachel,I had no idea that any of this was going on...Rachel,<BR/>I had no idea that any of this was going on until today. We will be praying for your sweet little Kevin everyday! I wish there was something more we could do, let us know if there is! Know that our prayers are with you and your family. <BR/>Love, LaurelAllen familyhttps://www.blogger.com/profile/12263645606053324387noreply@blogger.comtag:blogger.com,1999:blog-1022552198648860734.post-80524844962004841452008-02-10T19:28:00.000-06:002008-02-10T19:28:00.000-06:00Rachel, Janine got me up to date on all that's bee...Rachel, Janine got me up to date on all that's been happening. I am so sorry. We are praying hard for Kevin and your family. I have an idea for something high protein & high calorie. Paul drinks "Muscle Milk" when he is training hard for swimming because he is a picky eater and needs a huge amount of protein, etc. I get it premade, which is easier, but you can buy the powder at GNC. I get it at Costco in a case. Paul says it is much tastier than Ensure. I also make him fruit smoothies every morning to go with his breakfast. The Chemo will make food taste funny to Kevin, so small meals more often is good, so shakes are great. Jelly Bellies are good too! We love you all, Aunt JanJan https://www.blogger.com/profile/11383118080349674767noreply@blogger.comtag:blogger.com,1999:blog-1022552198648860734.post-2824081282562307252008-02-10T16:03:00.000-06:002008-02-10T16:03:00.000-06:00Hi Rachel,I just felt I had to tell you my heart w...Hi Rachel,<BR/>I just felt I had to tell you my heart was with you today in church! You are ever in my prayers.<BR/>Take Care,<BR/>Kate from MOPSKatehttps://www.blogger.com/profile/02882613708164053935noreply@blogger.comtag:blogger.com,1999:blog-1022552198648860734.post-78723253240637379502008-02-09T18:40:00.000-06:002008-02-09T18:40:00.000-06:00Hi Rachel,My heart goes out to all of you, and esp...Hi Rachel,<BR/>My heart goes out to all of you, and especially dear Kevin. I am keeping you all in my prayers. May I suggest organic fruits for smoothies for Kevin, he will love them and then add a good whey protein and other nutritional supplements. Garden of Eden has a good protein powder. They have childrens vitamins, minerals also.<BR/>Stay close to the Lord, He will get you through this.<BR/>God Bless,<BR/>Donna Stenman<BR/>Carole Mother in LawAnonymoushttps://www.blogger.com/profile/05299191340326520094noreply@blogger.comtag:blogger.com,1999:blog-1022552198648860734.post-62643399381179189952008-02-09T17:20:00.000-06:002008-02-09T17:20:00.000-06:00I found your blog through a google news alert for ...I found your blog through a google news alert for medulloblastoma.<BR/><BR/>My son was diagnosed with a supratentorial PNET in 2003, similar to medullo but with a grimmer prognosis. Another name for medulloblastoma is infratentorial PNET.<BR/><BR/>We are now 4 1/2 years from diagnosis and just returned from St. Jude with the all clear.<BR/><BR/>None of us knows what the future holds for our child, but I want to encourage you, we went through some terribly rough times and it is such a gift to see him living his life now, something I've never taken for granted.<BR/><BR/>I am one of the moderators for the pediatric brain tumors yahoo group, I'd like to recommend it to you:<BR/><A HREF="http://groups.yahoo.com/group/pediatricbraintumors" REL="nofollow">http://groups.yahoo.com/group/pediatricbraintumors</A><BR/><BR/>There is also a medullo-specific group that is smaller, if you are interested in joining that group, go to:<BR/><A HREF="http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=medullo-pnet&A=1" REL="nofollow">http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=medullo-pnet&A=1</A><BR/><BR/>I would like to suggest that you consider contacting St. Jude before making your final treatment decision, they treat more medullo's than anywhere else in the world and we have been very happy with their approach.<BR/><BR/>Please contact me if I can be of help to you, my email is bkbell at gmail dot com and my phone is on my son's website, we are in California.<BR/><BR/>I am so terribly sorry you are going through this right now.Kathyhttps://www.blogger.com/profile/14682272042615851184noreply@blogger.comtag:blogger.com,1999:blog-1022552198648860734.post-68263715710954107692008-02-09T14:00:00.000-06:002008-02-09T14:00:00.000-06:00Mike and Rachel,Please know that Dominic and I are...Mike and Rachel,<BR/>Please know that Dominic and I are praying for you and your family. We are truly sorry for what all of you, especially Kevin are going through right now. I'm sure that you keep questoning "Why" as we all do, unfortunately none of us have that answer. <BR/>Be assured that we will do anything that we can to help all of you. Don't be afraid to ask for help.<BR/>Also, I know that Children's Hospital has some great Doc's and that you are being faced with the most difficult decisions that you have ever had to make in your life. I also know that driving to downtown Detroit and staying at the hospital for an extended length of time can wear on eveyone. I have some family friends that have used a great neurosurgeon at U of M. If you would like more information please give us a call and I would love to talk to you. We hope that Kevin will become more comfortable and continue to be a brave boy!!<BR/>Marcia SmithMarcia Smithhttps://www.blogger.com/profile/03727526001401100168noreply@blogger.com