Kevin's first day is almost over. We are waiting for his MRI and LP to be done with, we might not hear anything about the results until our E clinic visit with his doctor. Today they took labs, sedated him for a full head and spine MRI and a lumber puncture (to test his CNS fluid, or in my terms, brain fluid).
Kevin handled the poke today with a few crocodile tears but over all much better than normal. They fitted him with an arm board while we went between assessment triage and the MRI waiting room. We had a long wait in the MRI waiting room and despite not being able to eat anything Kevin handled everything like the little man he has become. It is 3:30pm and Kevin is still under, it will be close to 5:00pm before we can start to try to feed him anything.
Tomorrow is more labs for the endocrine doctor this time. I am not sure about the rest of the day yet as I haven't seen the full schedule for tomorrow as of now.
Our annual Christmas trip to see Mike's family outside of DC was really nice. We all enjoyed lots of family time, Nana, Pop-pop and Uncle Ed even made the drive from PA to see us! We wish we would have had a chance to meet up with a few more friends, but hopefully next time we are in town. Jake was great for the 10+hour drive. We are blessed with some amazing kids!
I miss Scotty, Jake and Mike alot (I even had a dream about changing Jake's diapers last night; I don't think I have had more than 8 hours away from Jake since he has been born), but I am glad to be here in Memphis with Kevin through all of this.
Rachel
3 comments:
I can't imagine all the back and forth with only some of your kids. With everything else you've gone through, that still has to be so tough. Good luck to Kevin this round, hopefully it's all good news.
Glad to hear you made it to Memphis safely. We are praying for a good week and an all clear. You are in our thoughts and prayers. Hope you get to enjoy Memphis some and see friends. Tell Kevin hi and hang in there. We are proud of him. Much love, Terri and Heather
Hoping and praying for good results from the check-up and for a smooth and happy week. I'm sorry you have to be away from the rest of your family, but at least it's only for a few more days. Good news is that, more than likely, the next check-up will only be about two days long.
Thinking of you all often and so glad to hear you had a great holiday season. We're rooting for Kevin all the time!
Your friends,
Tae, Will, Ethan and Sean
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