You are probable wondering 'what is Medulloblastoma?' It is a type of cancer that Kevin has. The Neurosurgeon who did Kevin's surgeries is at a conference right now and won't be back until Monday the other neurosurgeon wants to give up on trying to get Kevin's body to process the CFS (aka brain fluid) and just put a shunt in tomorrow. He will also need to get a port inserted into his chest for Chemo. I am very scared they are doing operations without fully investigating. We were originally told they were going to challenge his EVD over a couple of days. They gave it less than 24 hours. From what I have learned tonight a shunt will more than likely fail within the first two years and carries a risk of infection. There is another procedure called third ventriculostomy, I am going to ask tomorrow morning why they aren't considering this.
I had to pull Kevin's MRI's CT scans, list of procedures and pathology for insurance purposes and decided to read it over before sending it to the insurance company. I feel like I am getting more information from pulling his info than from the doctors.
Okay, happy stuff! Kevin was begging most of the day to go down to the library. He walked down there with the assistance of 3 physical therapist (1 therapist was training the 2 others). They took the walker, but Kevin on the way back said he didn't need it. I am so happy he has this determination. It is his determination that gives me most of the hope.