Today should be our last full day/night as an inpatient, this round. It's almost 10 a.m. and Kevin is sleeping peacefully. As his energy level's grown, so has his intolerance for being woken up for vitals in the middle of the night. He's been very defiant with the nurses. They're not doing anything that hurts him, only taking blood pressure and temperature. But he get's woken up just the same, and at that point he's none too happy. I usually give them 2 or 3 minutes before I intervene (daddy doesn't want to be the bad guy). Like I said it's not like there doing anything painfull, but i think once he's woken up it becomes a battle of the wills. I think it's his way of showing that he still has some controll. Still, he passes the line of what's appropriate, thus I'm going to have a talk with him when he's wide awake today. Other then that, he's doing great. He's not been close to getting sick. He knows at this point how far to go when he eats (not very far), a lesson that took a little bit of time. He's usually have good intentions with food, but after a few bites he becomes a little nauseaus and knows to stop. He goes back on TPN after his Bone Marrow Transplant today, so his weight should come back up to where it was at before being admitted. He's been very active. He was with my mom and Rachel from noon until a bit after 8. I brought Brad to Beal Street. We shopped a little and had dinner at BB Kings (excellent ribs). When we got back Kevin was playing in the game room. We ended playing Uno until 10:15 at night--Kevin won! He's a little nervous this morning about the BMT. Last time he got pretty sick. It's not toxic like the chemo, but still it's a lot for the body to take in. Hopefully it goes better this time. Last time it was a rough hour. His counts are still high, at 2000. Probably Monday he'll be down close to 0. At that point Rachel pretty much keeps him away from people. He's woken up now twice, and went right back to sleep. After today we're 3/4 of the way through!!!!
Take Care,
Eric
1 comment:
3/4 of the way that's amazing!!! Please tell Kevin that we love and miss him very much:)
Love,
Uncle Nic, Aunt Kelly & Dylan
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