I am writing this after reading another child's story. A child who had the exact same tumor as Kevin, who had the exact same prognosis, the exact same percentage chance of survival. He didn't make it even through treatment. Probably one lone cancer cell went wild and proliferated tumors wildly within his small body. Here at St. Jude I have seen children die terrible deaths. St. Jude tries to do it with dignity, but really where is the dignity with all of the morphine they have to be on and their mothers still cannot hold them because the tumors running down their back cause so much pain? I am watching children (I mean CHILDREN!) go on end of life treatment. No child should ever have to be put on end of life treatment. I am angry. No mom should ever be told, well at least you have more children. What mom would ever wants to choose to give one of her children back to God before they have gotten to live a full life? What mom would it be easier for her to lose a child she carried for months within her own body because she has another child? Yes, I have been told, well at least you have more children. Like another one of my children can replace the other. To all the moms out there....would you be able to lose one of your children and just replace them like that with one of your other children?
Just the idea of losing Kevin caused me to push forward despite almost everyone nay saying something was wrong with him in the beginning. I will never forget that night waiting for Kevin's MRI the next day and how even the residents along with family made me feel like I was wasting everyone's time, Kevin just had migraines like his dad had as a kid, why couldn't I just accept that? Just the incredibly painful thought of losing Kevin caused me to research, to reach out, to try to try find the best place, the best protocol for Kevin to get treatment. Just the thought of losing Kevin caused my mommy instincts and see through the lies the oncologist at DCH was telling us when I grilled her about her experience and the protocol they offered us. Just the thought of losing Kevin caused me to pack up our almost 4 month old baby, myself, and Kevin within 48 hours and drive 15 hours through an ice storm to make sure he qualified for this protocol, to spend almost a year away from our home. I raced like crazy to get all of his medical records, the slide of the tumor Fedex to Memphis. God sent us an angel to help us get in the door, I didn't turn that angel away.
Ask any mom who has lost a child and having another child doesn't make the pain any less, doesn't remove the hole that will be a permanent part of her heart for the rest of her life. I am a mom and though I haven't lost a child I can see that hole in any mom I meet who has had to send a child back to heaven, even if she has more children.
No child should ever suffer through cancer. No parent, weither they have more than one or not, should ever lose a child to cancer.
Please sign the petition to raise RAISE AWARENESS & FUNDING FOR CHILDHOOD CANCER . Cancer is the #2 killer of children in the united states and gets a lot less funding than adult cancer research.