As I wrote, Kevin seemed to have a decent day today especially considering how rough his first day was last cycle. Well, he was just saving it all for me apparantly. Rachel's husband, Mike left around 8 or 8:15, and by 8:30 Kevin was having a pretty rough time (vomitting). We went through quite a few containers and well, he was just plain miserable. They had to medicate him pretty strongly to get it under control. He seems to act pretty loopy on just one dose of benedryl, but add another dose plus adavan (or anavan not sure) and he was pretty out of it. He's been sleeping peacefully now for about an hour, so hopefully the worst is over. Last cycle his body immediately rejected the medicine, but this time he took several hours to really get sick. He had to get his bed changed twice in 30 minutes. I dragged the recliner over to the side of he bed, because he was too weak to stand up while waiting for the linnen change. I look forward to seeing him wake up tomorrow morning, hopefully more lucid and feeling better overall. I find myself breaking rules a little more this cycle, as I climbed into bed with him again for a few minutes just to help him fall asleep. I'm glad he wasn't sick all day, and if his body wanted to save it for dad, then that's fine with me. Overall he's doing mch better then his first cycle's first day (Day -4). I think Rachel outlined this before, but his schedule once again (and this is off of memory so I'm sure there will some incorrect spelling) is as follows:
Day -4 (today)Cisplanten (chemo) and Amophostamine (drug to protect him from chemo side effects)
Day -3 (Saturday) Cyclophosphomate (chemo) and I believe an oral dose of Viscrantin
Day -2 (Sunday) same as Day -3
Day -1(Monday) Day of rest
Day 0 (Tuesday)Stemcell infusion. This is why it's wacky, because the doctors like to count the days from the beginning of the bone marrow transplant, not the introduction of chemo
Best day scenario Kevin could leave the hospital the evening of Day 0, since he's already acclimated to TPN. I don't want to get ahead of ourselves though, as his stay could vary widely.
Hopefully tomorrow is a decent day.
Take Care
Eric
1 comment:
I am so glad things are going better for you guys this round. Sorry to hear about the night tremor. How scarey. As if this is not scarey enough. I hope today continues to go well for you all. We have not been so lucky. You know us if something odd can go astray that will be what happens to us. It has and it is very frustrating. Actually it is scaryier than the actual cancer diagnosis for me. So let me reminf you how happy I am that things are trotting along the right course for Kevin. I will keep you guys in my prayers. . Much love, Terri and Heather
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